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Myelodysplastic syndromes (MDS) treatment and side effects

We're here for you if you want to talk

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Myelodysplastic syndromes (MDS) clinical trials

Some people have treatment for MDS as part of a clinical trial. Clinical trials help researchers develop new treatments for blood cancer and improve existing ones.

Research is happening now involving people with MDS. If there is a clinical trial available, your doctor might suggest you join it. You can also ask your hospital team if there are any clinical trials that are relevant to you. This could include trials that are being run at a different hospital to the one where you usually have your treatment.

Taking part in a clinical trial has benefits, like the chance to have a new treatment that might not be available otherwise. You’ll be very closely monitored and have detailed follow-up. But it does come with uncertainties, so it’s up to you whether you take part.

If you don’t want to be in a trial, or there isn’t a suitable trial running, you’ll be given the best standard care that’s right for you.

Finding out about clinical trials

Ask your doctor if you are interested in taking part in a clinical trial. They can check if there are any available that you could join.

You can also find out more about clinical trials by contacting our Clinical Trials Support Service. They’re here to support you and help you through the clinical trials process.

“I research things online so I can keep up-to-date with anything that’s new with MDS. I stick to sources I can trust, and if I find anything I think might be relevant to me I discuss it with my doctor.”

Ally, diagnosed with MDS in 2008.

Ally and his young daughter. Ally is wearing fire brigade uniform
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