News and blogs
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"This is what I missed while shielding in my flat"
This Mental Health Awareness Week, Erica shares a poetic account of how connecting with nature has helped her mental wellbeing, both during lockdown and beyond.
Group of charities announce first blood cancer vaccine efficacy research funding
A new collaborative of charities focusing on research into COVID-19 vaccine efficacy for people with blood cancer has announced funding for research into how well they work in people with cancer that affects their immune system.
Latest Updates from the Vaccine Research Collaborative
Welcome to our live blog all about research looking at the effectiveness of the covid vaccines in people with blood cancer.
What else can we use to protect people with blood cancer from covid?
We spoke to Professor Andrew Ustianowski, the clinical lead of a trial called PROVENT, to find out about alternative methods that might protect people with blood cancer from covid.
It feels like while everyone's getting back to normal, my life’s still on pause
Jill's been shielding since March 2020. She hopes that research into how effective the vaccine is will help people with blood cancer get back to normal.
People with blood cancer now account for 1 in 20 new Covid intensive care patients
This has added to our concern that the vaccines aren't working as well for people with blood cancer as they do for other high-risk groups.
Do people with myeloma have an antibody response to the Covid vaccine?
Finding a mixed-race stem cell donor for Dad simply wasn't an option
Ben tells the story of his Dad John's blood cancer diagnosis, and how the responsibility of becoming a stem-cell donor fell on his shoulders, despite only being a 50% match.
New group launched to fund research into Covid vaccine efficacy for blood cancer
We're part of a new vaccine research collaborative that has been launched to fund research to find out how effective Covid vaccines are for people with blood cancer.
“I feel lucky that I can benefit from years of blood cancer research”
Deciding on whether to enrol on a clinical trial can be a tough decision, as David knows all too well. Find out why he eventually said yes to taking part, what he's learned about the process, and how he's benefiting from the research it offers.
Living with a rare disease: Sara’s story
Sara was diagnosed with Waldenström macroglobulinaemia (WM) in 2016. WM is a rare form of lymphoma and only 350 people are diagnosed with it each year in the UK. Now in remission, Sara tells us what it was like having an uncommon and often misunderstood disease.
How can I get involved in blood cancer research?
In November 2020, we asked our community to complete our survey and help us set our research priorities for the next five years.
Does this new study mean blood cancer patients aren't protected by the covid vaccine?
Research published suggests people with blood cancer may not have a good response to the first dose of the covid vaccine. We understand that this will be very concerning news, and want to explain more about what this research means for you.
We respond to the first study on vaccine effectiveness in people with cancer
The first study looking at vaccine efficacy in people with cancer patients suggests they "lack the same protection" after the first dose of the Pfizer vaccine.
My diagnosis with a rare blood cancer
Living with a rare disease can present many difficulties. In this blog, Dick shares his experience of living with a rare type of blood cancer called essential thrombocythaemia (ET), and how he works to keep fit, well-informed, and stay positive.
“He was gone, and it was the most peaceful moment”
When Steve was diagnosed with a rare type of blood cancer, Kirsten was right there beside him. Despite the highs and lows of Steve’s treatment, they faced it together – right up until the moment when she felt his heart stop.
Covid vaccine: should people with blood cancer get an antibody test?
Here's what we think people with blood cancer should know about antibody tests, such as how they work and what the results might mean for you.
Watch: Delving into the data of people with chronic lymphocytic leukaemia (CLL)
In this new video, we take a look into the lab at Professor Jim Allan's research, as he identifies two genes which could help predict who would benefit from early treatment of CLL.
Our response to the vaccine phase 2 priority list
We're disappointed to learn that household members of the clinically extremely vulnerable are not part of the Phase 2 priority list.
One of the hardest things is that it’s a ‘hidden’ condition
MPNs are a group of rare blood cancers which can often remain stable or progress quite slowly, but can present many challenges for those living with them. Here, Jane shares her experience of the disease and her advice for those who have recently been diag
