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Are you from a Black or Pakistani background and have been affected by blood cancer?

We know people from Black and Pakistani backgrounds are less likely to take part in clinical trials. We need your help to understand why this is and how we at Blood Cancer UK can change this.

What you’ll do

You'll be invited to participate in an interview or workshop to share your insights and experiences of blood cancer and discuss how you think we can improve access to research or clinical trials.

We're looking for people who...

  • Are from a Black or Pakistani background
  • Have a lived experience of blood cancer
  • Are over the age of 18
  • You don't need to have been on a clinical trial to take part

Want to take part?

If you're happy to be interviewed or join a workshop and meet the above criteria, register your interest and we'll share further details.

Next steps

Once you've registered your interest, we will get in touch to share further information.

If you want to learn more about the project and this opportunity, see our Frequently Asked Questions below or email Bethan [email protected].

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Frequently asked questions about the access to clinical trials project

Research shows that people from minority ethnic groups are less likely to participate in medical research, including clinical trials for blood cancer treatments.

This is because:

  • Many people from minority communities are unaware of available opportunities to join clinical trials, limiting their participation.
  • There is often a lack of culturally tailored information and support for healthcare professionals and people from ethnic minorities, creating barriers to understanding and engagement.

This underrepresentation makes it challenging to assess how treatments may affect people differently.

  • Better understanding of attitudes towards and barriers to accessing clinical trials for the Black and Pakistani community.
  • Develop interventions to improve awareness and access to blood cancer clinical trials and reduce health inequalities.

We're conducting workshops with members of the Black and Pakistani communities, healthcare professionals and researchers to better understand what stops people from these communities from joining clinical trials.

We're focusing on these ethnic groups because some types of blood cancer are more common in these communities.

We'll use the findings from these workshops to co-design tools with the community to test and learn.

Throughout the project, we'll be leaning on our Steering Group of professionals and community members to ensure the products developed are useable across the UK and adaptable for all minority ethnic groups.

The following pharmaceutical companies have funded this project but have had no input into its content or direction:

  • Bristol Myers Squibb

Read about how we work with the pharmaceutical industry.