Just diagnosed with blood cancer?
Just diagnosed: everyday life
You may be worried about what a blood cancer diagnosis means for your job or your study plans. Here's some general guidance on working, studying and where to get financial support.
Talking to your employer about your diagnosis
You don’t have to tell your employer about your diagnosis. But cancer is classed as a disability under UK equality law, so if you do tell your employer, they mustn’t discriminate against you. They also have to consider "reasonable adjustments" to help you carry on working.
So if you tell your manager or HR department about your diagnosis, you can discuss things like changes to your working hours, working from home, and having time off for medical appointments. And if you need extended time off, you’ll want to discuss how your employer can support your return to work.
Whether you can carry on working will depend on what sort of work you do and how the blood cancer and its treatment affect you. Your healthcare team will be able to advise you about how things might change for you physically and mentally, and how long your treatment is likely to last.
Another thing to consider is the coronavirus pandemic. As someone with blood cancer, you may be considered "clinically extremely vulnerable" and more likely to get seriously ill from the virus.
The government in the UK country where you live may have specific guidance for people in the clinically extremely vulnerable group who can't work from home. They may also offer financial support through the job retention scheme (furlough) or sick pay. We have up-to-date information about this on our blood cancer, money and work page.
We also have a fact sheet for employers which you can share with your employer or colleagues. This explains how blood cancer and the coronavirus pandemic affect you and what your rights are.
My employer made a range of adjustments which allowed me to work effectively. Most significantly they provided access to counselling which helped me come to terms with my ‘new normal’.
- Peter, diagnosed with a myelodysplastic syndrome (MDS)
Hospitals sometimes have social workers or welfare rights advisers who can advise you on any benefits you’re able to claim. This might be especially useful if you’re on a low income or are unemployed.
You may be able to apply for support with travelling to medical appointments. And as someone with cancer, you should qualify for free prescriptions.
Read our information on blood cancer, money and work. This has the latest information about financial support if you can't work during the coronavirus pandemic. Citizens Advice and Macmillan are also good sources of information.
Living well with blood cancer
A blood cancer diagnosis can affect everyday life in many ways. But many people are able to adapt to their new situation over time, and not only cope with blood cancer, but live well with it.
We have information written by and with people affected by blood cancer which you may find helpful. See our Living well with blood cancer section to benefit from other people's experience and advice.
Carrying on with your studies
If you're a student, speak to your healthcare team about your treatment plan, and whether they think you will be able to continue studying. With this information, you can talk to your college or university about taking a break, or getting extra support such as more time for assignments. Cancer is classed as a disability under UK equality law, so contact the disability service at your university or college as soon as you can to get the help you need.
We have more information on study, university and work for young adults aged 16 to 25.
More information on Blood cancer
Blood cancer types
Just diagnosed with blood cancer?
What is blood cancer?
Blood cancer prognosis
Blood cancer tests
Blood cancer symptoms and signs
Blood cancer treatment
How does blood cancer start?
What causes blood cancer?
Blood cancer side effects
Watch and wait
Monoclonal gammopathy of undetermined significance (MGUS)