We're here for you if you want to talk

0808 2080 888

[email protected]

Symptoms of CLL

We're here for you if you want to talk

0808 2080 888

[email protected]

Many people with chronic lymphocytic leukaemia (CLL) are diagnosed after a routine blood test and haven’t noticed any symptoms. Others may have one or more symptoms such as feeling extremely tired, swollen glands, night sweats or lots of infections.

Fatigue and CLL

Fatigue is a very common symptom at all stages of CLL, and many people will experience it at the point of diagnosis. It’s a type of extreme tiredness that comes on quickly and can take time to go away.

There are things you can do to manage fatigue so you can carry on as normally as possible. Take a look at our information on blood cancer and fatigue, including people’s stories about how they cope with fatigue in their daily lives.

Other symptoms of CLL

Other symptoms are more common in advanced CLL and are rare at diagnosis, when most people feel well.

If you experience any of these symptoms at any stage of CLL, tell your GP or hospital team. It will help them decide whether it’s time to start treatment.

  • getting tired or breathless more quickly
  • swollen lymph nodes (glands), usually in your neck, armpits, groin, or under your collarbone
  • repeated infections such as colds and flu
  • losing weight quickly when you’ve not been trying
  • high temperature (fever) without any other signs of infection
  • drenching night sweats that soak your night clothes and bedding.

Having any of these symptoms does not necessarily mean you have CLL or any other type of blood cancer. But if you are experiencing symptoms that are unusual for you, go on for a long time or are worrying you, contact your GP and describe your symptoms as clearly as you can.

Our free pocket guide to blood cancer symptoms can help you record your symptoms for discussion with your GP.

A woman takes a call on a headset as she works from home, looking at the computer in front of her. She's seated at a leather office chair with a filing cabinet and window behind her.

Worried about anything or have questions?

If you need someone to talk to, please don't hesitate to contact our Support Service by phone or email.

Support for you