Co-create health information
Find out how your experience of living with blood cancer can inform our health information.
Information
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Date
Year-round
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Where
From home
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Time commitment
Varies
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Minimum age
18 years of age
Help us create and improve our health information
We need your help to make sure our health information is relevant, honest and answers the questions that are most important to you.
What you’ll do
The level of involvement varies by project, but can include:
- Talking to a member of our health information team about your experience
- Taking part in an online workshop with other people affected by blood cancer
- Giving your feedback on information
- Sharing your story on our website, social media or in our printed booklets.
Examples of current and upcoming projects
In 2025, we're updating or creating new information on:
- Acute lymphoblastic leukaemia (ALL).
- Navigating the healthcare system and advocating for yourself.
- Information for people newly diagnosed with blood cancer.
- Signs and symptoms of blood cancer.
- Blood cancer treatment.
What you’ll bring
- Your personal experience of living with blood cancer.
- A desire to make a difference and help others.
It's important to us that we hear from people from a range of cultural backgrounds and ethnicities to make sure that we're producing the most accurate and relevant information we can for anyone affected by blood cancer.
Want to take part?
Click the 'Email the team' button to let us know that you're interested. Please give a brief overview of your connection to blood cancer and which of our projects you’d like to help with.
What to expect
Co-creating blood cancer health information
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Use your experience of blood cancer to inform our work.
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Connect with like-minded people and work with a friendly, supportive, and compassionate team.
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Get paid for your time.
"I've worked on several projects and am proud of the end results. Everyone is so kind, encouraging and understanding. Working with Blood Cancer UK really feels like you're helping to make a difference.”
- Sue, member of our Involvement Network working with the Health Information team.
Recent projects
Thanks to the support of our blood cancer community, we're creating new health information all the time. Recent projects include:
- Publishing a series of webpages about side effects of blood cancer including hair loss, nerve damage, brain fog, sleep problems, itching and fertility struggles. We worked with people from our community to hear their experiences, find out what helped them manage side effects and co-design this information.
- People affected by blood cancer also gave their insight to help us produce a new printed and online information about eating well, infections and CAR T-cell therapy.
- In 2024 we worked with people affected Hodgkin lymphoma, chronic myeloid leukaemia (CML), diffuse large B-cell lymphoma (DLBCL) and follicular lymphoma to update and improve our online and printed information on these conditions.
You might also be interested in
How we make our blood cancer information
We're a member of the PIF TICK quality mark scheme. Find out how we make our blood cancer information, helpful, accurate and true to life.
Join our Involvement Network
Want to help but not sure how? Join out Involvement Network to find out about the latest opportunities to inform our work.
Get involved
Discover ways to get involved with us from taking on a challenge, volunteering, fundraising, or giving money.
Beat Blood Cancer Lottery
Just been diagnosed with blood cancer or know someone who has? Get essential information here.