Co-create our health information
We want to hear from you if you're interested in sharing your lived experience with blood cancer to help us create our print and digital health information, or if you are a healthcare professional.
Recent publications and projects
Thanks to the support of our blood cancer community, we're creating new health information all the time. Recent projects include:
- Publishing a series of webpages about side effects of blood cancer including hair loss, nerve damage, brain fog, sleep problems, itching and fertility struggles. We worked with people from our community to hear their experiences, find out what helped them manage side effects and co-design this information.
- People affected by blood cancer also gave their insight to help us produce a new printed and online information about eating well, infections and CAR T-cell therapy.
- In 2024 we worked with people affected Hodgkin lymphoma, chronic myeloid leukaemia (CML), diffuse large B-cell lymphoma (DLBCL) and follicular lymphoma to update and improve our online and printed information on these conditions.
Current and upcoming projects
In 2025, we're updating or creating new information on:
- acute lymphoblastic leukaemia (ALL)
- navigating the healthcare system and advocating for yourself
- information for people newly diagnosed with blood cancer
- signs and symptoms of blood cancer
- blood cancer treatment.
Want to take part?
If you have a lived experience of blood cancer or are a relevant healthcare professional and want to help us with any of the projects above, we'd love to hear from you. Get in touch with our health information team at [email protected].
It's important to us that we hear from people from a range of cultural backgrounds and ethnicities to make sure that we're producing the most accurate and relevant information we can for anyone affected by blood cancer.
More opportunities to get involved
If you'd like to hear more about opportunities to get involved with health information at Blood Cancer UK, sign-up to get regular updates.
If you or someone you care about are affected by blood cancer, join our involvement network.
If you're a healthcare professional, join our healthcare professional network.
How we make our health information
At Blood Cancer UK, we aim to give you good information – information that’s helpful, accurate and true to life. We are a member of the PIF TICK scheme, the UK’s only independently-assessed quality mark for health information.
Find out how we create health information.
Website development
Over the past few years, we have been doing some important work to improve the user experience across our website which hosts all of our vital health information. We have begun to explore how people affected by blood cancer use our website, to allow us to make our information as easy to access and user friendly as possible. To do so, we have been asking people to undertake a series of tasks and feedback their thoughts.
If you are interested in shaping the future of our website, please contact Ben Sykes at [email protected]
I know how much patients rely on Blood Cancer UK materials around the time of diagnosis ... it’s very worthwhile to make sure they are as accurate and informative as possible.
- Dr Richard Dillon, Consultant Haematologist and a Clinical Senior Lecturer in Cancer Genetics
Dr Richard Dillon