We're here for you if you want to talk

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[email protected]

Support our work

As someone affected by blood cancer, you can help by sharing your experiences to design new services or update existing ones. On this page, you'll find some opportunities to support our work.

Current opportunities

We recently published a series of new web pages about side effects like hair loss, nerve damage, brain fog, sleep problems and fertility problems. We worked with people from our community to hear their experiences, find out what helped them manage side effects and co-design this information.

In 2023, people affected by blood cancer also gave their insight to help us produce a new booklet and online information about eating well.

We have also worked with people affected by acute myeloid leukaemia (AML), myeloma, myelodysplastic syndromes (MDS), essential thrombocythaemia (ET), polycythaemia vera (PV) and myelofibrosis (MF) to update and improve our online and printed information on these conditions.

Current and upcoming projects

We're reviewing information about:

  • acute lymphoblastic leukaemia (ALL)
  • chronic myeloid leukaemia (CML)
  • diffuse large B-cell lymphoma (DLBCL)
  • follicular lymphoma
  • Hodgkin lymphoma (to make sure we reflect a diverse range of voices we are specifically looking to recruit young men and people of Black, Asian or minority ethnic backgrounds for this project)
  • infections and sepsis
  • stem cell transplants.

How you can help

If you would like to help with any of these projects, please contact our Health Information team at [email protected]

Our mission is to make sure that everyone newly diagnosed with blood cancer are told about additional emotional and practical support that is available for them and their loved ones.

How are we going to do this?

To achieve this ambitious goal we're working with people affected by blood cancer and healthcare professionals to design a product that will improve access to services.

How can you help?

We're continually seeking insight from people recently diagnosed to share their experiences of diagnosis, identify challenges, test our thinking, and co-design a service.

If you’d like to support this project please get in touch with Abi Howse, [email protected].

Over the past few months, we have been doing some important work on improving our website. We have begun to explore how people affected by blood cancer use our website, to allow us to make our information as easy to access and user friendly as possible. To do so, we have been asking people to undertake series of tasks and feedback their thoughts.

If you are interested in shaping the future of our website, please contact Ben Sykes at [email protected]

The core aim of group is to highlight relevant considerations for Blood Cancer UK research, the researchers we fund and research funding processes, so that this best meets the needs of people affected by blood cancer. This is achieved by scoring and providing feedback on grant applications submitted to us by researchers.

The creation of a new post, Research Programme Manager – Patient Voice and Research Partnerships, will ensure this group expands meaningfully in the coming years to ensure that the patient voice is embedded fully in our entire research programme. You can read more about how we involve people in our research here.

Two Blood Cancer supporters hug at the London marathon race reception

Involvement network

If you've been affected by blood cancer and want to improve outcomes for others. Join our involvement network to receive opportunities to participate in projects.

Join involvement network