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Living well with blood cancer stories

Hear from others who've adjusted to life after a blood cancer diagnosis

Telling family and friends you have blood cancer

Simone was diagnosed with myeloma after a scan showed damage to her bones. She describes how different people reacted to the news, and gives her tips on telling other people.

Accessing information when you’re first diagnosed

Vij is living with polycythaemia vera (PV), a chronic blood cancer. He talks about the value of reading up on your condition.

How to talk to your medical team

Quentin reflects on the importance of good communication with your medical team when you’re diagnosed with blood cancer.

When blood cancer needs urgent treatment

When Jacqueline was diagnosed with a fast-growing type of non-Hodgkin lymphoma, she had little time to process what was happening.

Business as usual: working with CLL

Mel was diagnosed with CLL in 2013. He talks about how he’s carried on working throughout watch and wait, treatment on a clinical trial and the coronavirus pandemic.

Turning leukaemia on its head

Despite the harsh side effects of Yvonne's treatment for leukaemia, she was determined to keep as active as she could. By adapting her approach to fitness, Yvonne was able to come back even stronger.

My blood cancer journey to empowerment

Megan, 27, was diagnosed with Hodgkin lymphoma. Now in remission, she reflect on her blood cancer journey and what she did to take back control and find empowerment.

Giving my second chance at life its best shot

After finally making it to the end of her blood cancer treatment, Joanna entered an anxiety-ridden world. She explains how she's overcoming some of these struggles, so that she can give her second chance at life its best shot.

How I’ve coped with changes to my body

Jacqueline, 45 was diagnosed with diffuse large b-cell lymphoma in 2017. She had chemotherapy and radiotherapy treatment and is now in remission.

Fatigue won't stop me enjoying life

Erica, 69, has been on watch and wait (a way of monitoring blood cancer) since 2003

An older man - Gerald - in the countryside. He wears a brimmed hat, check shirt and has a backpack. The image is closely cropped with Gerald looking direct to camera and smiling.

My strategies for dealing with fatigue

Gerard, 72, was diagnosed with chronic lymphocytic leukaemia (CLL) in 2017

Your story can help others

People newly diagnosed with blood cancer need to know they are not alone, and that other people are living and enjoying their life.

Three things I've changed to manage fatigue

Carina, 45, was diagnosed with hairy cell leukaemia in June 2017

How I cope with mental fatigue

Emma, 32, was diagnosed with a myelodysplastic syndrome (MDS) and has had four rounds of treatment, including two stem cell transplants and chemotherapy

My lightbulb mument with anxiety

Donna, 52, first had treatment for follicular lymphoma in 2009 and is now on a two-year maintenance treatment plan

How I've adjusted to life with leukaemia

Paul, 51, was diagnosed with chronic myeloid leukaemia (CML) in 2013

Finding my new normal

Mike, 75, was diagnosed with chronic lymphocytic leukaemia (CLL) five years ago

A middle aged couple pose for a photo together indoors

Overcoming my feelings of isolation

Lynn, 55, was first diagnosed with classical Hodgkin lymphoma in 1999 and has had lymphoma five times since then

How I found the financial support I needed

Louise, 63, was diagnosed with Hodgkin lymphoma and has been in remission since undergoing a stem cell transplant

Reducing my stress by rethinking work

Carina, 45, was diagnosed with hairy cell leukaemia in June 2017; following chemotherapy, she’s been in remission since November 2017

Asking for help to work through chemo

Bianca, 35, was diagnosed in 2016 with Hodgkin lymphoma and had six months of chemotherapy

I was the boss with blood cancer

Louise, 41, was diagnosed with Hodgkin lymphoma in 2012 and is now in remission and back working in the family business

Keeping my business running during treatment

Lawrence, 62, was diagnosed with Hodgkin lymphoma in 2005, and relapsed in 2007 and 2011

The right time to change my working life

Joanna was originally diagnosed with chronic myeloid leukaemia (CML) in August 2010 when she was 41.

How I built up my fitness after treatment for myeloma

Retired soldier Edward was diagnosed with myeloma in 2016, and had a stem cell transplant in 2017.

Doing my best to stay active with leukaemia

Katie, 35, was diagnosed with diagnosed with chronic myeloid leukaemia (CML) in 2007 when she was just 22

Running helps me show blood cancer who’s boss

Rob, 30, was diagnosed with chronic myeloid leukaemia (CML) in 2011, after noticing a suspicious-looking bruise

Cycling kept me on track during watch and wait

Sarah, 47, was diagnosed with chronic lymphocytic leukaemia (CLL) in 2011 and put on watch and wait

Eating habits that boost my energy

Emma, 39, was diagnosed with acute lymphoblastic leukaemia in 2015

How leukaemia changed my attitude to eating

Anna, 44, was diagnosed with acute myeloid leukaemia (AML) in 2015

Coming to terms with my watch and wait diagnosis

In 2003, Erica went to see her gynaecologist following a routine operation, and was told that she had chronic lymphocytic leukaemia (CLL)

Coping with my emotions while I 'watch and wait'

Kate was diagnosed with a form of low-grade non-Hodgkin’s lymphoma in 2010, and has been on watch and wait ever since.

Supporting each other while we watch and wait

Just a year after getting the all clear from non-Hodgkin lymphoma (NHL), Trevor was told he had chronic lymphocytic leukaemia (CLL).

Looking after myself, as well as my husband

Sylvia’s husband, Tony, was diagnosed with acute lymphoblastic leukaemia (ALL) when he was 63.

Supporting my friend with leukaemia

Samantha, 31, is supporting her friend Natalie, who was diagnosed with acute myeloid leukaemia in 2016. Following chemotherapy and stem cell transplants, Natalie is now receiving palliative care.

Spending precious time with my husband

Jude, 44, has been supporting her husband who is living with non-Hodgkin lymphoma

Adjusting to life with mum on watch and wait

Dan is 16. His mum Kate was diagnosed with a form of low-grade non-Hodgkin lymphoma (low-grade NHL) in September 2010, and has been on watch and wait ever since.

Hear from others who have adjusted to life with and after blood cancer